Comments for My Autistic World

Comment on Symptoms Of Mild Autism – Clues To Autism by Camilo

Camilo — Fri, 04 May 2012 04:57:43 +0000

Thanks everyone for your ignhsit into all of this.Having just found out that our 10yo son has SPD – how was that missed when the opening statement on the multi-disciplinary assessment 4 years ago was his parents “have some concerns regarding sensory issues”? It has taken all this time to find someone who knew enough about SPD to diagnose it. Same child, same sensory issues, just with a lot more defensiveness and associated problems now.A year before that he was assessed as having “above average” expressive and other language skills after going through intensive speech therapy, early intervention units, etc. before he started pre-school. A major improvement from when he was 2 and not saying anything at all. Same child, after a lot of intensive therapy for his “dyspraxia”.Now in year 4 at primary school, he is at least 2 years behind his peers, maybe more. We are in the process of having him assessed as PDD-NOS, even though previous assessments have ruled out ASD (including Asperger’s due to speech delay). What’s the difference? He hasn’t been getting the support he needed at school (or elsewhere for that matter). The PDD label, as much as it frightens me, will help with that.What will he look like in 5 or 10 years? I really don’t know, but I am pretty hopeful about this. It’s a roller-coaster though. I reckon the therapy he is getting now will make a big difference. Certainly he’s happier most of the time. Getting the right support at school should also mean that he is able to learn again. I’m convinced he can do this. It’s not easy though.

Comment on Symptoms Of Mild Autism – Clues To Autism by Lee

Lee — Fri, 04 May 2012 04:27:14 +0000

inappropriate things b/c he has no “filter” and smeetioms gets “stuck” on a theme. However, he has made SO much progress, esp over the last 2 years. If he keeps making this much progress, I think he will be able to compensate for his “disorder” – whatever it is. I hope I can look back and be amazed at how far he has come from nonverbal special ed preschooler to fully functioning adult. I have not given up hope that he will not have or need a “label” when he is an adult.And I agree PDD-NOS is basically a worthless dx. It can mean anything from a severely (even nonverbal) affected child whose symptoms aren’t in the right “configuration” for an autism dx or a child who has a few autistic symptoms. There is a lot of gray area between ASD, ADHD, and SPD and I think this is where PDD-NOS falls – if all else fails, give the PDD-NOS dx. I read somewhere (???) that there is no real difference between severe ADHD and mild ASD. To me, this is a problem, because the core deficits of these 2 disorders are so different. I don’t know why the ASD dx is being given out so willy-nilly. I am one of those who believes (after reading The Mislabeled Child and several of Greenspan’s books) that the ASD label is handed out too liberally. I have read on message boards about some ASD kids being “social” and “outgoing”. What??? The term “autism” literally means a turning inward to self. Since when are outgoing, social kids labeled as autistic? There has to be a point at which you say, “Yes, there are autistic symptoms, but this child is not autistic.”Ok, I will get off my rant.Thanks for the thought-provoking post!

Comment on How to Potty Train Children With Autism by Roblox

Roblox — Fri, 04 May 2012 03:08:48 +0000

Having read this post about what you go through with an asttuiic child, I can only say that I appreciate the difficulty you go through and offer my greatest sympathy as you raise this child. As a Christian, I believe your reward will be great for the trial you are enduring. Please, please hang in there! Thanks for giving me a description I can understand…even though it probably doesn’t cover even 1% of what you experience.

Comment on Autism Affects The Entire Family – Learning To Cope by Serene

Serene — Fri, 04 May 2012 02:06:13 +0000

Hi, just came across your wetisbe, thanks to a friend. You are amazing and so is the work you do. Thank you.I am married to a beautiful loving aspy, who has four kids all aspy (one of some we share) Isabela 8.We live life so full of love and happiness. Are children too are gifted, loving balanced kids. So nice to hear another family knowing that we all have issues but can hide it better. blessings to you and your family. xxxx

Comment on Biomedical Treatments And Why You Should Try Them by Cabdiqani

Cabdiqani — Fri, 04 May 2012 01:49:17 +0000

Wow. Thanks. Well, I thought, why not do a sieres that could educate people on how autism looks from this’ side of it. When you’re knee-deep’ in living with it, it can be a bit overwhelming, and sometimes you forget that those around you could use some information on how to deal with it also. And for those who may have just heard that diagnosis, I hope I can provide a light at the end of the tunnel that lets them know it’s gonna be alright. It may not be easy but they will make it. Thanks for taking the time to comment!